December really threw us for a loop! Hopefully this new month (and new year!) treats us a bit better.
I'll start with Theo, since he has had quite a few struggles in his short little life so far. As most of you know, he had a urological surgery in July, at 9 months old. His recovery and follow up appointments went smoothly for the most part, and his surgeon told us we wouldn't have to do anything further, the issue was corrected! Hooray!
Unfortunately, at the beginning of December we discovered he had a hernia. It is not dangerous at this point, but he will need to have surgery to fix it around 2 years old. It's a fairly common procedure, but we don't love that our little baby will have to go under anesthesia again.
The week before winter break, both boys came down with a respiratory virus. They came down with fevers that Monday afternoon, and Theo went downhill fast. He had very labored breathing, wheezing, coughing, the whole nine yards. We had to take him to the ER at Children's Hospital. First, they used a vacuum suction up his nose and down his throat to clear him out, which was so so sad and scary. They took a chest x-ray which showed he did not have pneumonia (phew!), but they did find that his oxygen saturation percentage dropped when he fell asleep. So, they put him on oxygen and monitored him overnight. He HATED everything about being on oxygen. Thank goodness he is still nursing, that is the only way I was able to calm him down enough to keep the oxygen in. Even with the soothing nature of nursing, he woke constantly all night long and grabbed and yanked at the tubes every time... we would have to hold him down to fix all the tubes until he nursed again and calmed down and fell back asleep. It was probably the hardest night of my life aside from the night I was in false labor with Heiko. We were finally discharged after about 12 hours, and were sent home with oxygen. We kept him on it as much as we could the next day, but it was near impossible. He is at an age where he is super active, super stubborn, and isn't developmentally ready to be reasoned with. Luckily on the third day at a follow-up appointment with one of our pediatricians, we got to switch to only giving oxygen at night. That was still a challenge, but he was much more accepting of it at night. Then at the end of the week, after we had been closely monitoring his levels all week, taking readings both awake and asleep, we finally got to stop it altogether.
At Theo's first follow-up appointment, we actually took Heiko in to be seen too because he was on day 3 of fevers which were climbing each day. The doctor didn't like what he saw or what he heard in Heiko's chest, so we were sent back to the hospital for a chest x-ray for him! And, not to be outdone by his little brother, Heiko was diagnosed with pneumonia. He started an antibiotic right away, and recovered pretty quickly, but neither of them could go back to school all week. It was a crazy tough week, but at least it didn't happen over Christmas!
Finally, we noticed quite a few months ago that Theo's right eye was weaker than his left. He has a condition called amblyopia; his brain is favoring the left eye when focusing on something in the distance. In the last couple of months we have noticed a decline in the strength of the right eye, which the ophthalmologist found concerning as well. So we have begun the exciting process of patching Theo's stronger eye for two hours every day in order to attempt to strengthen the weak eye. This strategy only works in about 5-10% of cases. We will patch for two months, then keep him patch-free for a month, then return to the doctor to see if there are any lasting improvements. If so, we will continue patching trials and continue to evaluate the success of the trials. If not, he will have surgery to correct it as soon as possible. Without correction of this condition, he could eventually lose vision in the right eye altogether. For those of you who haven't been counting, that's a THIRD surgery. Ugh. We hope that we could possibly have our doctors coordinate to do both surgeries at the same time so he's only going under once (two birds with one stone)...
BUT we are crossing all our fingers and toes that our little fighter is in that 5-10% that patching works for! And the first step is actually successfully and consistently patching him, which has gone amazingly well so far! With the vigor in which he tried ripping the oxygen tubes off his face a couple weeks ago, we thought for sure he would never allow us to put the patches on. But our little sweetie pie actually LIKES his patches! It is the strangest thing. He doesn't even flinch when we put it on him, and if you mention his patches he says "patch!" and runs to his room to look at his patching chart with all his old/used patches. Hopefully we can keep his excitement level up about it over these next two months!
It was sure a busy month, but everyone is happy and well now! Phew! Here are some pictures of our two little troopers!